Special thanks to Jennifer and Jonathan

 Special thanks to Jennifer and Jonathan of Salon Khouri for recently promoting Crazy Hair Day for Kids Cancer on live television. Salon Khouri and its staff have been very supportive of children with cancer for many years and are constantly… coming up with creative ideas to make a difference. Here is a link to their segment from Let’s Talk Live:
www.wjla.com/blogs/lets-talk-live/2013/05/salon-elkhouri-18884.html

If you would like to hold a Crazy Hair Day fundraiser at your school, please contact us info@thetruth365.org

A Mom Urgently Needs Advice

A Mom Urgently Needs Advice…Please Share to Help Spread the Word…A teacher at a small school in Belgium contacted us about a first grader named Ilke. She was diagnosed in September with chordoma, a type of brain cancer. Her treatments s…o far have been unsuccessful. Her doctors in Belgium and France have said that this is the “end of the line.” Ilke is not ready to give up. Her mom is seeking any options that might save Ilke’s life. Do you have any suggestions or contacts? If so, please post a comment or e-mail us at team@thetruth365.org. We will forward all of suggestions to Ilke’s mom Tinke so that she can consider them. Below are the messages that we received. The first one is from Mr. Wim, a teacher at “Our Beehive” who has been supporting our projects for several years by involving his students. The second message is from Ilke’s mom. Thanks, MG

“Hi Mike,
We got the following message tonight from Tineke the mum of Ilke, a first grader in our school. Maybe you want to share this? We are all, teachers and kids, devastated … we are only a small school with 55 kids, we just feel like a big family. We don’t want to give up hope!
Grtz, Wim Copman

Message from Ilke’s mum…
Last September our daughter of six has been diagnosed with a brain tumor. Type: chordoma, a slow growing tumor that does not respond to any type of chemotherapy. Since then she underwent extensive brain surgery twice to extract as much as possible. Following that she recieved protontherapy in Paris. To our surprise that therapy did not have the desired effect. In fact it even grew further. The medical staff here has reached the end of the line and can’t offer another solution. We have no doubt that they used all their knowledge and skills but we will not give her up without exploring all the options. Please share this as much as possible in the hope that someone somewhere may be able to help her. The more people we can mobilise, the bigger the chance of succes. We have her medical file and scans and want to show this to as many specialists as possible. Thanks. Tinke”

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If you have any ideas, please comment here or send them to us at team@thetruth365.org and we will forward them to Ilke’s mom.See More

 

Good luck to childhood cancer advocate

Good luck to childhood cancer advocate, author, attorney and athlete Jonathan Agin who will be racing in a Half Ironman Triathlon this weekend in memory of his daughter Alexis. He will also be carrying the Hope Flag for Team Inspiration to …honor all cancer warriors. To learn more about Jonathan and his advocacy for children with cancer, please check out his website at
www.jonathanagin.com. His excellent Huffington Post columns can be found here: www.huffingtonpost.com/jonathan-agin
Have a great race Jonathan!
(Also, in the photo on the left, Jonathan is pointing to the sky as a tribute to Alexis who passed away from DIPG in 2011 two weeks shy of her 5th birthday.)