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We got the following message tonight from Tineke the mum of Ilke, a first grader in our school. Maybe you want to share this? We are all, teachers and kids, devastated … we are only a small school with 55 kids, we just feel like a big family. We don’t want to give up hope!
Grtz, Wim Copman
Message from Ilke’s mum…
Last September our daughter of six has been diagnosed with a brain tumor. Type: chordoma, a slow growing tumor that does not respond to any type of chemotherapy. Since then she underwent extensive brain surgery twice to extract as much as possible. Following that she recieved protontherapy in Paris. To our surprise that therapy did not have the desired effect. In fact it even grew further. The medical staff here has reached the end of the line and can’t offer another solution. We have no doubt that they used all their knowledge and skills but we will not give her up without exploring all the options. Please share this as much as possible in the hope that someone somewhere may be able to help her. The more people we can mobilise, the bigger the chance of succes. We have her medical file and scans and want to show this to as many specialists as possible. Thanks. Tinke”
If you have any ideas, please comment here or send them to us at email@example.com and we will forward them to Ilke’s mom.See More
www.jonathanagin.com. His excellent Huffington Post columns can be found here: www.huffingtonpost.com/jonathan-agin
Have a great race Jonathan!
(Also, in the photo on the left, Jonathan is pointing to the sky as a tribute to Alexis who passed away from DIPG in 2011 two weeks shy of her 5th birthday.)